When you stay ahead of Becker, you preserve more than muscle function
In Becker, every fiber matters and every moment counts.
Progression in Becker doesn’t happen all at once. It unfolds beneath the surface, fiber by fiber, movement by movement, shaping the course of the disease long before decline becomes visible. That’s why it’s important to understand what’s happening inside your muscles now, so you can stay a step ahead and get the support you need to protect the muscle fibers that power the moments that matter most.
You have to have a lot of strength and a desire to really pursue what you want to do despite how challenging it may be just to move around.
I think performing is this beautiful thing where you know you come into a space bringing your own experiences, your own baggage, or whatever you may have. It’s been really cool to be a representative of the arts when I walk into rooms for Becker and then a representative of Becker when I walk into rooms for the arts.
JESS, New York City
Music composer and improv comedian, living with Becker
You have to have a lot of strength and a desire to really pursue what you want to do despite how challenging it may be just to move around.
I think performing is this beautiful thing where you know you come into a space bringing your own experiences, your own baggage, or whatever you may have. It’s been really cool to be a representative of the arts when I walk into rooms for Becker and then a representative of Becker when I walk into rooms for the arts.
JESS, New York City
Music composer and improv comedian, living with Becker
Taking action
It’s important to know that you are not alone and resources are available to help you manage your Becker muscular dystrophy.
I want to help people better understand what it’s like to have Becker and I want to also communicate to the community any breakthroughs, therapeutics or hopefully a cure one day.
Because there might be someone out there who doesn’t really like talking about it or doesn’t know how to express what it’s like to have Becker, and I want to be that help for that person.
Elias, Riverside, CA
Aspiring podcaster and retired teacher, living with Becker
You have to have a lot of strength and a desire to really pursue what you want to do despite how challenging it may be just to move around.
I think performing is this beautiful thing where you know you come into a space bringing your own experiences, your own baggage, or whatever you may have. It’s been really cool to be a representative of the arts when I walk into rooms for Becker and then a representative of Becker when I walk into rooms for the arts.
JESS, New York City
Music composer and improv comedian, living with Becker
See and hear Elias share what it’s like to live with the
progression of his Becker muscular dystrophy
How the seemingly mundane has had a profoundly monumental impact on his life as a teacher and father.
