Resources

Resources to Help Manage Your Becker Muscular Dystrophy

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Doctor Discussion Guide

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Becker Muscular Dystrophy Clinical Trials

ClinicalTrials.gov
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Find a Specialized Care Center

MDA Care Centers
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PPMD Care Team Resource
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Additional Support

Advocacy Associations
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Becker Muscular Dystrophy Management Guide

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Video Library

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Genetic Testing

ParentProjectMD.org
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PPMD Common Blood Lab Tests

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Individual's Stories and Support Videos

Watch Charlie discuss muscle function decline and the importance of being proactive
Watch Nevin discuss his views on muscle function decline in Becker muscular dystrophy

References

  1. Darras, B. T., Program, N., Miller, D. T. & Urion, D. K. Dystrophinopathies - GeneReviews - NCBI Bookshelf. GeneReviews, Seattle (2022).
  2. Aartsma-Rus A, Van Deutekom JC, Fokkema IF, Van Ommen GJ, Den Dunnen JT. Entries in the Leiden Duchenne muscular dystrophy mutation database: an overview of mutation types and paradoxical cases that confirm the reading-frame rule. Muscle Nerve. 2006 Aug;34(2):135-44. doi: 10.1002/mus.20586. PMID: 16770791.
  3. What is Becker Muscular Dystrophy: https://www.mda.org/sites/default/files/2021/07/BMD_FactSheet_Jun2021.pdf. Published June, 2021. Accessed October 28, 2023.
  4. Aartsma-Rus A, Ginjaar IB, Bushby K. The importance of genetic diagnosis for Duchenne muscular dystrophy. J Med Genet. 2016 Mar;53(3):145-51. doi: 10.1136/jmedgenet-2015-103387. Epub 2016 Jan 11. PMID: 26754139; PMCID: PMC4789806
  5. Finsterer J, Stöllberger C. Cardiac involvement in Becker muscular dystrophy. Can J Cardiol. 2008 Oct;24(10):786-92. doi: 10.1016/s0828-282x(08)70686-x. PMID: 18841259; PMCID: PMC2643160.
  6. De Wel B, Willaert S, Nadaj-Pakleza A, Aubé-Nathier AC, Testelmans D, Buyse B, Claeys KG. Respiratory decline in adult patients with Becker muscular dystrophy: A longitudinal study. Neuromuscul Disord. 2021 Mar;31(3):174-182. doi: 10.1016/j.nmd.2020.12.010. Epub 2020 Dec 26. PMID: 33454189.
  7. Benjamin R Mandac, M. (2023, September 20). Becker Muscular Dystrophy treatment & management. Rehabilitation Program, Medical Issues/Complications, Surgical Intervention. https://emedicine.medscape.com/article/313417-treatment
  8. Duchenne/Becker Treatment and Care: https://www.cdc.gov/ncbddd/musculardystrophy/treatments.html. Accessed November 28, 2023.
  9. Benjamin R Mandac, M. (2023, September 20). Becker Muscular Dystrophy treatment & management. Rehabilitation Program, Medical Issues/Complications, Surgical Intervention. https://emedicine.medscape.com/article/313417-workup
  10. Rubin, M. (2023, November 12). Duchenne muscular dystrophy and Becker muscular dystrophy - pediatrics. Merck Manuals Professional Edition. https://www.merckmanuals.com/professional/pediatrics/inherited-muscular-disorders/duchenne-muscular-dystrophy-and-becker-muscular-dystrophy
  11. Magot A, Wahbi K, Leturcq F, Jaffre S, Péréon Y, Sole G; French BMD working group. Diagnosis and management of Becker muscular dystrophy: the French guidelines. J Neurol. 2023 Oct;270(10):4763-4781. doi: 10.1007/s00415-023-11837-5. Epub 2023 Jul 9. PMID: 37422773.
  12. Angelini C, Marozzo R, Pegoraro V. Current and emerging therapies in Becker muscular dystrophy (BMD). Acta Myol. 2019 Sep 1;38(3):172-179. PMID: 31788661; PMCID: PMC6859412.
  13. Cruz Guzmán Odel R, Chávez García AL, Rodríguez-Cruz M. Muscular dystrophies at different ages: metabolic and endocrine alterations. Int J Endocrinol. 2012;2012:485376. doi: 10.1155/2012/485376. Epub 2012 Jun 3. PMID: 22701119; PMCID: PMC3371686.
  14. Clinical Trials Glossary Terms. https://www.nih.gov/health-information/nih-clinical-research-trials-you/glossary-common-terms. Accessed November 7, 2023.