Members Archive : Becker Muscular Dystrophy

We recently learned that the source of our son’s high liver enzymes and high CK levels is due to Becker’s. We have an appointment with a specialist in Orlando in a couple weeks but doing whatever we can to learn whatever we can about this rare disease now.

Becker Community Member

34990

My wish is to know of others in the world who have this condition.

Becker Community Member

60090

Our 14-year-old adopted son was diagnosed with Becker two years ago by happen stance. Thankfully, he has not been showing signs of progression. We were able to meet with his care team today and go over the treatment plan. Now I am at home going down the rabbit hole of what one day may come and what life could look like for him.

Becker Community Member

29127

My 12 year old son was recently diagnosed. We are all having a hard time with this. I have so many worries. He has already been hospitalized twice. My hope for him is to have the BEST quality of life possible. He has so many hopes and dreams. It's breaking my heart.

Becker Community Member

29654

That we get the treatments we've been desperately waiting for.

Becker Community Member

17872

I want to help and be helped as I try to live.

Becker Community Member

20169

I feel alone in this because nobody understands what I'm feeling and I want to be able to go through this with somebody who truly gets it.

Becker Community Member

20169

Healthcare providers are advocating and staying up to date on the Becker Community. You are not forgotten!

Becker Community Member

26508

To find a cure.

Becker Community Member

59101

☀️Joy is our life together knowing our loving God is always here in the midst of everything! Although we encounter new challenges each day as we get a little weaker, we have amazing people and equipment to make life a little less of a struggle. Recently we installed ceiling lifts in our little apartment and wow what a great help! Life is great when we accept the challenge instead of fighting it. And thank you God for our wonderful lives!

Becker Community Member

07024

I want my son to meet other kids like him. Meeting one friend would help him so much!

Becker Community Member

30047

To feel well enough with symptom management to do the activities we enjoy.

Becker Community Member

42164

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