The power of community starts with you.

Join the movement to connect the Becker community.

For those living with Becker Muscular Dystrophy, a supportive community fosters hope, understanding, knowledge, and connection. Each message of support you share lights up the Becker Power Map, creating a visible network of support.

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Becker Power Map

United States and Canada

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Look for Joy

Jess, an individual living with Becker muscular dystrophy, shares a powerful reminder to the Becker community: while challenges are real, so is joy.

Surround yourself with support. Lean on your community.

Hear from the community

Stay strong

Becker Community Member

Georgia

Support throughout the journey

Becker Community Member

Utah

We recently learned that the source of our son’s high liver enzymes and high CK levels is due to Becker’s. We have an appointment with a specialist in Orlando in a couple weeks but doing whatever we can to learn whatever we can about this rare disease now.

Becker Community Member

Florida

My wish is to know of others in the world who have this condition.

Becker Community Member

Illinois

Our 14-year-old adopted son was diagnosed with Becker two years ago by happen stance. Thankfully, he has not been showing signs of progression. We were able to meet with his care team today and go...

Becker Community Member

South Carolina

My 12 year old son was recently diagnosed. We are all having a hard time with this. I have so many worries. He has already been hospitalized twice. My hope for him is to have the BEST quality of life possible. He has so many hopes and dreams. It's breaking my heart.

Becker Community Member

South Carolina

That we get the treatments we've been desperately waiting for.

Becker Community Member

Pennsylvania

I want to help and be helped as I try to live.

Becker Community Member

Virginia

I feel alone in this because nobody understands what I'm feeling and I want to be able to go through this with somebody who truly gets it.

Becker Community Member

Virginia

Healthcare providers are advocating and staying up to date on the Becker Community. You are not forgotten!

Becker Community Member

West Virginia

To find a cure.

Becker Community Member

Montana

☀️Joy is our life together knowing our loving God is always here in the midst of everything! Although we encounter new challenges each day as we get a little weaker, we have amazing people and...

Becker Community Member

New Jersey

I want my son to meet other kids like him. Meeting one friend would help him so much!

Becker Community Member

Georgia

To feel well enough with symptom management to do the activities we enjoy.

Becker Community Member

Kentucky

We're all in this together, and treatment options are on the horizon!

Becker Community Member

New Jersey

I hope that all people living with Becker muscular dystrophy can have a more fulfilling life. Perhaps we don't have many breakthroughs right now, but we trust in God that we will find something for...

Becker Community Member

Texas

I hope one day something could cure this.

Becker Community Member

Illinois

I hope for a cure one day.

Becker Community Member

Illinois

Becker muscular dystrophy is a struggle but I refuse to let it keep me down yet it does limit me at doing some things.

Becker Community Member

Oklahoma

I wish for a cure one day.

Becker Community Member

Oklahoma

I hope there are new medications that help us keep our functioning for as long as possible!

Becker Community Member

Idaho

I pray that the Becker community stays strong and feels the flames of hope growing stronger with each passing day! There are many days where that is extremely hard to do, but you just have to keep...

Becker Community Member

New Jersey

Much love to the Becker community.

Becker Community Member

Saskatchewan

Hoping for more advances that can help regardless of the underlying defect.

Becker Community Member

Florida

Praying for all dealing with this disease. May a cure or at least a treatment be found soon.

Becker Community Member

Oklahoma

Lots of prayers to the ones suffering from bmd!

Becker Community Member

Texas

I’m 58 years old and was diagnosed 18 years ago. I feel like I’m the only adult with BMD because I don’t have any real local support. It would be great if I was able to connect with someone that understands what it’s like to live with this disease.

Becker Community Member

New York

13 year old recently diagnosed with Becker, staying strong and positive ❤️

Becker Community Member

California

I wish for a better hope and outlook for those navigating Becker muscular dystrophy and that they feel the support of community members behind them.

Becker Community Member

Colorado

Keep going and don’t give up.

Becker Community Member

Montana

I wish for individuals with BMD to take a proactive approach in knowledge and treatment of the disease before major lack of function occurs.

Becker Community Member

Oklahoma

My wish for the Becker community is for each and everyone to know that you are not alone in this. We might not be strong physically but together we can be strong for each other.

Becker Community Member

California

We stand with you - sending hope and love!

Becker Community Member

Colorado

There is no time like now to connect! Your voices are being heard and information is being exchanged which leads to a more informed community and excitement toward to the future. It's happening, stay connected!

Becker Community Member

Florida

There are many tools and ways to keep living a fulfilling life with BMD. Don't give up and keep pushing forward!

Becker Community Member

Ontario

Hope is on the way.

Becker Community Member

Iowa

I wish for community and support.

Becker Community Member

Maryland

For many people to understand what I mean when I say, "I have Becker muscular dystrophy."

Becker Community Member

Texas

Love and strength from New Jersey!

Becker Community Member

New Jersey

My wish will always be for better awareness, treatments and maybe one day a cure!❤️

Becker Community Member

Pennsylvania

Hoping there will be new therapies available soon for this disease.

Becker Community Member

Ohio

Your willingness to help others learn about BMD is an amazing gift. It helps everyone to better understand what needs to be done now and into the future to better support the entire BMD community. Thank you!

Becker Community Member

Massachusetts

Becker needs more research, more attention and more support.

Becker Community Member

Wisconsin

My wish for the Becker Community is for continued perseverance, dedication and community ♡

Becker Community Member

Ontario

I truly admire this community of individuals!

Becker Community Member

Pennsylvania

For us, we are going to live our lives to the fullest, and roll with the punches!

Becker Community Member

Missouri

Stay strong and continue to support one another.

Becker Community Member

Ontario

I hope that it will get easier.

Becker Community Member

Arkansas

Live life to the fullest and prayers for all!

Becker Community Member

Ohio

My two boys have Becker and I have mild carrier symptoms. Looking forward to seeing the map, it's always better to know we are in a community.

Becker Community Member

New York

Stay informed and don’t stop advocating.

Becker Community Member

California

Collective healing and support.

Becker Community Member

California

Life time friendships!

Becker Community Member

Alabama

Community!

Becker Community Member

Florida

Hope!

Becker Community Member

Missouri

Funding for ongoing research.

Becker Community Member

Illinois

More community events like BEED!!! More research!!! Thankful for all families before ours who have contributed to research so far.

Becker Community Member

Wisconsin

That there will soon be leaps in medical advancement to treat and reverse skeletal muscle loss due to Becker.

Becker Community Member

Indiana

Prayers for peace and guidance for us all.

Becker Community Member

Tennessee

More awareness for Becker.

Becker Community Member

Tennessee

Supporting our mental health and removing barriers to mental health care.

Becker Community Member

Oklahoma

To get the full support we deserve in order to live and lead our best lives.

Becker Community Member

Indiana

Spread advocacy.

Becker Community Member

Kentucky

That we continue to come together to support each other.

Becker Community Member

Tennessee

Hello From Michigan!!!!! Anybody out there!!!!!

Becker Community Member

Michigan

Acceptance.

Becker Community Member

Louisiana

Our wish is for further information and a cure for Beckers.

Becker Community Member

Mississippi

We support you!

Becker Community Member

Massachusetts

I wish we can continue to grow the Becker community and one day get all engaged community members in one room.

Becker Community Member

Florida

We hope for connection and support!

Becker Community Member

Michigan

Live life to the fullest!

Becker Community Member

Connecticut

Keep asking questions, connecting and inspiring!

Becker Community Member

Massachusetts

More research, more tools and a long life as functional as possible!

Becker Community Member

Washington

I hope that people can build community with one another!

Becker Community Member

California

Fast research progress.

Becker Community Member

Washington

I wish that more people know about muscular dystrophy.

Becker Community Member

Maryland

Maryland and my wish for Beckers is for more activism.

Becker Community Member

Maryland

Hello from Prince Edward Island, Canada!

Becker Community Member

Prince Edward Island

More awareness and more focus.

Becker Community Member

Virginia

Hello Becker Community. Greetings from Michigan!

Becker Community Member

Michigan

You're not fighting alone! I'm a scientist and I've worked on understanding both the fundamental biology of skeletal muscle regeneration and on muscular dystrophy treatments. We're in this together! Let's light up this map!

Becker Community Member

Colorado

To be seen, understood and celebrated for the brilliance we carry forward in tackling every day.

Becker Community Member

Illinois

I wish that this community keeps growing in size and strength! So wonderful to see people connecting and sharing experiences.

Becker Community Member

Colorado

Community bonding and healing!

Becker Community Member

California

Love.

Becker Community Member

California

More social activities, movie night, pizza night, outdoor adventures.

Becker Community Member

Florida

Community, Resources, Friendship.

Becker Community Member

Florida

To continue to research for the cure.

Becker Community Member

New Jersey

I have Becker and was diagnosed at age 5. My form of Becker is thankfully relatively mild but I know many of the same struggles living with a chronic condition that can be unexpected. I have also...

Becker Community Member

Oregon

My wish is for future generations to be able to recode DNA so rare diseases, and especially muscular dystrophy, will be problems of the past.

Becker Community Member

California

My wish is for a cure or even a treatment to give us hope. May the insurance companies also not deny coverage so our boys have a chance at the life they deserve.

Becker Community Member

Wisconsin

My wish for you is a happy, long life where you can achieve all of your dreams. Also, may a drug come out that’s safe to help make your life easier. We love you!! We support you. We see YOU.

Becker Community Member

Georgia

Social support for young children living with Becker.

Becker Community Member

Georgia

To get more research and treatments available to slow down its progression.

Becker Community Member

Georgia

Better treatments and improved multidisciplinary standard of care across the country.

Becker Community Member

California

My wish is that Becker MD will be given the same importance and visibility as other major NMDs.

Becker Community Member

Florida

My wish is for continuity of care with caring and knowledgeable professionals who look at the person as a whole and support them as such. Drastically needed mental health services with trained...

Becker Community Member

Washington

My wish is that we all come together to connect and support one another. I also hope we can build stronger connections locally - because as they say, we’re all in this “together.” I really look forward to connecting with more people locally and in other communities.

Becker Community Member

Ontario

"You do not need to know precisely what is happening, or exactly where it is all going. What you need is to recognize the possibilities and challenges offered by the present moment, and to embrace them with courage, faith, and hope." Thomas Merton (Author)

Becker Community Member

Florida

My wish is for the health care system to better support BMD patients - financially, physically and mentally.

Becker Community Member

Pennsylvania

My wish for the Becker community is for research to continue and clinical trials to make progress toward finding out more information and potential treatments.

Becker Community Member

Saskatchewan

To find friends.

Becker Community Member

Alabama

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Each shared message generates a new light on the map, highlighting the global reach of the community.

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Together, we’ve created a glowing reminder of the power of unity, support, and connection.

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Taking Action

It’s important to know that you are not alone and resources are available to help you manage your Becker muscular dystrophy.

Learn the importance of working with a specialized Care Team to manage your Becker muscular dystrophy and maintain muscle function.

Learn more

Learn more about potential Becker muscular dystrophy treatments and ongoing clinical trials.

Learn more

Explore Becker muscular dystrophy resources to support your journey.

Learn more

Power Up Community

The power of community starts with you.

Becker Power Map

Look for Joy

Hear from the community

Here’s how to shine your light.

Share a message

Light up the map

See your impact

Taking Action