Members Archive : Page 7 of 8 : Becker Muscular Dystrophy

Community, Resources, Friendship.

Becker Community Member

34771

To continue to research for the cure.

Becker Community Member

08723

I have Becker and was diagnosed at age 5. My form of Becker is thankfully relatively mild but I know many of the same struggles living with a chronic condition that can be unexpected. I have also engaged muscular dystrophy as a researcher. As a Fulbright scholar, I studied exon-skipping therapies for Duchenne, an approach based on Becker. It is my hope that people with Becker can move past barriers, especially in employment, and involve themselves as scientists and clinicians. Overall, I wish for a more accessible world for people with many different abilities, including people with Becker.

Becker Community Member

97035

My wish is for future generations to be able to recode DNA so rare diseases, and especially muscular dystrophy, will be problems of the past.

Becker Community Member

95330

My wish is for a cure or even a treatment to give us hope. May the insurance companies also not deny coverage so our boys have a chance at the life they deserve.

Becker Community Member

53083

My wish for you is a happy, long life where you can achieve all of your dreams. Also, may a drug come out that’s safe to help make your life easier. We love you!! We support you. We see YOU.

Becker Community Member

30071

Social support for young children living with Becker.

Becker Community Member

30004

To get more research and treatments available to slow down its progression.

Becker Community Member

30004

Better treatments and improved multidisciplinary standard of care across the country.

Becker Community Member

94553

My wish is that Becker MD will be given the same importance and visibility as other major NMDs.

Becker Community Member

32218

My wish is for continuity of care with caring and knowledgeable professionals who look at the person as a whole and support them as such. Drastically needed mental health services with trained professionals that know how this disease affects the patient and understands chronic/debilitating diseases in youth.

Becker Community Member

99109

My wish is that we all come together to connect and support one another. I also hope we can build stronger connections locally - because as they say, we’re all in this “together.” I really look forward to connecting with more people locally and in other communities.

Becker Community Member

L1G4T6

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